Dr. King did not say that we could talk again or did she indicate that we could have a meeting in the future when she had more time.  Several times I had told the social worker Mrs. Ferrari that we were willing to come to the hospital for a meeting on Jennifer's condition at any time - even in the middle of the night if that was the only time that was available to the Doctors, but it seemed that they were always too busy.  We were even willing to just talk five minutes at a time until all was cleared up, but even that was too much.

We were told that if every parent wanted to talk to them like we did, then they would not have time to do their jobs.  The fact is that every parent did not take up a lot of their time, and all we wanted to know was, what specifically they were planning to do in order to find out what Jennifer's problem was.  That type of information, it seems, was none of our business - and we were being overly concerned - so we were told.  During the meeting with Dr. King we mentioned the fact that when I signed the permission form for Jennifer's Bronchoscopy, Dr. Cromer told me that this type of procedure was not serious, and no chance of any complications.  I did some reading on the subject, and found out that in fact such a procedure is quite serious, and that it can lead to complications.  I told Dr. King that because of what I had read, I was not sure that I wanted Jennifer to go through the procedure.  Dr. King said that while it was true that the procedure was dangerous, Jennifer must undergo the Bronchoscopy because until she does they can not feed her in case she does in fact have the Fistula which they suspect.  At this point Dr. King also said that the deep vein I/V that Jennifer has can become infected, and can even lead to Hepatitis - its odd that when Dr. Cromer had me sign for the deep vein I/V, she said that such a thing was routine, and can stay in for months.  Dr. King also said that if Jennifer has the fistula, she would have to undergo corrective surgery for it immediately.  I did not want Jennifer to undergo the Bronchoscopy, nor did I believe that she had a fistula, but I felt compelled to allow it based on what Dr. King had told me.  As it turned out Jennifer did not have a fistula.  Jo held Jennifer for a bit after our meeting, but Jennifer turned blue again.  During the meeting with Dr. King, we expressed our concern that Jennifer's temp was often low - Dr. King suggested that we bring in some warmer cloths for her.  We did bring in some outfits later, but isn't that what the Hospital is supposed insure.  Jennifer's Wt for today was 3040.